What did we do?

Building on the work that the Palliative and end-of-life Priority Setting Partnership (PeolcPSP)  completed to formulate 10 national research priorities for end-of-life care, we further developed these priorities to find out which are of key interest within Greater Manchester.

 

This ensures that we have a top three to four priority areas for end-of-life research that we and other organisations can work on in the near future. The main output of this work is a report on priority areas for end-of-life research in Greater Manchester that the whole locality can share.

 

This project also developed research networks to showcase the work we’ve delivered, developing collaborations for our work moving forward in addition to defining focus for our end-of-life programme during years three to five.

 

Why was it important?

Palliative and end-of-life care is an under-researched area and requires greater attention. There are many unanswered questions to be addressed and, with limited resources, it is vital that we worked on end-of-life priority setting to bring direct and tangible benefits to local patients and their carers, families and friends.

 

How did we do it?

We gathered the views of local carers, patients and healthcare professionals to ensure that we adopted an inclusive approach. Carer and patient views were gathered through close working with local carer groups, and healthcare professional input was sought through a workshop in February 2016. This was supplemented by the development of a clinical advisory group made up of key healthcare professionals from our partner organisations.

 

Who did we work with?

Manchester University NHS Foundation Trust

Greater Manchester Academic Health Science Network

NHS England Strategic Clinical Networks

Pennine Care NHS Foundation Trust

Salford Royal NHS Foundation Trust

 

Downloadable resources

 

• Evaluation Reports

  Full Report: Next Steps for End of Life Research - Research priorities defined for Greater Manchester (June 2016)

   

  Easy-to-read Summary: Next Steps for End of Life Research - Research priorities defined for Greater Manchester (August 2016).

• Blogspot

  Working with carers and professionals to identify local priorities for end-of-life research - Peter Mellor (October 2016)

   

  How can we address national priorities for palliative and end-of-life care? - Prof Gunn Grande & Prof Damian Hodgson (April 2015)

• Publications

  Diffin J, Spence M, Spencer R, Mellor P & Grande G., (2017). Involving healthcare professionals and family carers in setting research priorities for end-of-life care. International Journal of Palliative Nursing. Vol 23(2) Feb 28 2017.

• Presentations

  Scoping the available services involved in the provision of end-of-life care in Greater Manchester - Peter Mellor

• Posters

  Priority setting for end-of-life research - Janet Diffin

 

More information

For more information please contact Michael Spence (Programme Manager).